This is a letter I just wrote the the CDC DES update page:
To whom it may concern,I would like for the government to look into and admit that DES was prescribed by some doctors even after they were told to stop prescribing it. I was born in 1977 and have a cockscomb cervix, which is an evident marker of DES exposure. What I’ve read in the past few days about DES makes me *sick*! There is no other way to describe this pit in my stomach, when I realize that I was given a drug as a fetus that caused my cervix to develop abnormally, and my mom’s doctor ought to have known that it caused reproductive disorders.I cannot be the only post-1971 victim of this drug. People like me–and all others who have reproductive disorders that may possibly be caused by DES exposure–need to be informed that the 1971 ruling was simply a warning, and not an outright ban. DES was not pulled from the market. In fact, when I was a pharmacy tech about 8 years ago, we used DES (the pharmacist had to compound it, and wouldn’t let any of us techs who were all female even touch the powder) for an elderly man in the nursing home who had a specific type of cancer.We, and all my DES sisters and brothers, need to know that they may have been affected. Doctors need to know that post-1971 babies can be DES sons and daughters as well. Women need to know that their problems with infertility, miscarriage, stillbirth, and preterm birth may be related to DES, and not “just one of those things.” Even more, it needs to be publicly proclaimed because DES exposure increases the likelihood of certain types of cancer. By not telling the full truth, women supposedly younger than 36 or so will not know that they too may be affected, and that they need more careful gynecological care. By not doing so, our lives may be at risk.Thank you for your time and attention.
You are not “too young” to be a DES daughter!
Filed under: DES, infertility, miscarriage | Tagged: adenocarcinoma, bicornate uterus, breast cancer, cancer, CCA, cervical cancer, cervix, clear cell adenocarcinoma, cockscomb cervix, DES, Diethylstilbestrol, ectopic pregnancy, endometriosis, hypoplastic cervix, hypoplastic uterus, hysterectomy, in vitro fertilization, infertility, IVF, miscarriage, multiple miscarriage, premature birth, premature labor, premature rupture of membranes, preterm, preterm birth, preterm labor, PROM, secondary infertility, septated uterus, stillbirth, T-shaped uteru, testicular cancer, undescended testicles, uterine fibroids, vaginal adenosis, vaginal cancer |